Privacy Policy

NLSG Pink and Green Butterfly logoWho we are

This is the privacy policy for the Northern Lymphoedema Support Group.

This policy document details the personal data that we collect, how we use it and who we share it with.

What personal data we collect and why we collect it

Contact forms

We collect  data on the Contact Us page of our website to answer queries that people may have or to signpost them to an appropriate source where we are unable to answer.

These email queries are held in an email system on our web hosting platform. Any information sent is not held on the website itself.

The contact form may also be a request for someone to be added to our mailing list. People on our mailing list receive a newsletter up to 4 times per year and occasional other emails to inform them about upcoming events that may of interest.

If anyone on the mailing list wishes all their personal details to be removed from the database, or for their details to be updated, they can email us and a strict procedure is then followed to ensure the correct data is deleted, changed or kept, depending on the wishes of the person..

The Northern Lymphoedema Support Group does not share any supporter personal data with any other organisation.

We use your details to contact you via electronic mail only because you have requested this. You have the option of unsubscribing from email communications that you have opted into.

Embedded content from other websites

Articles on this site may include embedded content (e.g. videos, images, articles, etc.). Embedded content from other websites behaves in the exact same way as if the visitor has visited the other website.

These websites may collect data about you, use cookies, embed additional third-party tracking, and monitor your interaction with that embedded content, including tracking your interaction with the embedded content if you have an account and are logged in to that website.

Who we share your data with

We do not share any data that you supply to us with any other organisation.

How long we retain your data

We retain your data until we receive a request to delete it

What rights you have over your data

You can  request that we erase any personal data we hold about you by emailing us at any time. This does not include any data we are obliged to keep for administrative, legal, or security purposes.

Where we send your data

online contact forms may be checked through an automated spam detection service.

Additional information

How we protect your data

No personal data is stored on our website, so there is no opportunity for a data breach via this mechanism. Emails are held on our mail server, which is based in the UK. Our mailing list data is held on a password-protected file which is only made available to committee members of the Northern Lymphoedema Support Group who need to carry out mailings to members of the group or to update or delete their data.